Full text of the talk I gave for the panel: "A Future Worth Fighting For: technology, disability, and ways of being" at the Futures Thinking Conference We are increasingly reimagining what it means to be-in-the-world. Particularly, we are accepting that we cannot live in the future as we live in the present. Indeed, if we … Continue reading Holiness. Utopia. Disgust. imagination, disability, and the mechanisms of erasure
The final piece about my "Can Blue Planets Find Space for Rainbows?" project is the book outline. Expect the following 9 chapters, largely in manifesto form, then detailed papers based on each. 1: A Tale of Two Scientists Using responses to the broadcast of Blue Planet 2 to illustrate the way that much-needed activism in … Continue reading The City and The City and the city, and
One of the most important things Greta Thunberg has highlighted is the structural problem with neurotypical discourse. It is acceptable in this discourse to say one thing "we must tackle the climate crisis" and do something totally at odds with that (doing nothing).For me, it is this disconnect that has been the single greatest cause … Continue reading You Cannot Be Serious
It is impossible to overstate how important technology will be in reframing the conceptual dynamic between abled & disabled people in the coming decade. It has always been a matter of choice (or, too often, simply not thought about, and therefore a result of unintended consequence) for abled people whether disabled folk have a place … Continue reading How Radical is Technology for Disabled Rights?
The incorporation process has begun. Papers sit on my desk waiting to be signed once final passes have been made. This is, of course, ridiculously exciting. It also feels like an incredible responsibility. I have always been totally open about my mental health, and the struggles it has caused me. I speak at conferences and … Continue reading Disability Anxiety: Starting Up Without Breaking Down Part 4
Part 2 of the Starting Up and Breaking Down series. What had started as an introductory note has ended up as a separate post. It probably serves as a useful preface for the series, which gets out there in one go why I am taking the approach I am with regard to talking openly about … Continue reading Full Disclosure?
Becoming an Entrepreneur when you have Poor Mental Health: A Journey in Unknown Parts You are probably here because you know one of three sides to me. As very few people know all three, let me say a paragraphette about each. They will quickly make clear why I am keeping this very public diary. I … Continue reading Starting Up and Breaking Down
“You don’t know where your limits are until you try to do something you can’t do. That’s where your limit is – right there where you quit” (Lazarus Lake) We all know “you can do anything you put your mind to” is just not true (we do, right, I mean, it’s not even science; it’s … Continue reading Where the Limits Lie
Let me say this up front. The title of this post is an unashamed riff on one of my favourite videos from the fabulous Ethan Newberry, aka The Ginger Runner. You should all watch it. https://www.youtube.com/watch?v=9ZQf3aiiYJE This is the 4th year I have toed the line for Race to the Stones, my first ultra back … Continue reading Adjusting Expectations
Please comment on the latest iteration in the comments or by replying on twitter to @agnieszkasshoes I would like to hear from all #actuallyautistic voices as well as any and all employers willing to consider this project You can download a pdf of the project as it stands here. Background "You ought always to be … Continue reading How You See Me, How You Don’t – Aaron Swartz Day