Holiness. Utopia. Disgust. imagination, disability, and the mechanisms of erasure

Full text of the talk I gave for the panel: "A Future Worth Fighting For: technology, disability, and ways of being" at the Futures Thinking Conference  We are increasingly reimagining what it means to be-in-the-world. Particularly, we are accepting that we cannot live in the future as we live in the present. Indeed, if we … Continue reading Holiness. Utopia. Disgust. imagination, disability, and the mechanisms of erasure

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Disability Anxiety: Starting Up Without Breaking Down Part 4

The incorporation process has begun. Papers sit on my desk waiting to be signed once final passes have been made. This is, of course, ridiculously exciting. It also feels like an incredible responsibility. I have always been totally open about my mental health, and the struggles it has caused me. I speak at conferences and … Continue reading Disability Anxiety: Starting Up Without Breaking Down Part 4

The Search for My Pale Blue Dot

Starting up Without Breaking Down - Part 3 (Come to the launch in Oxford - event details as per the photo here) I was a young child in the 1970s, and in 1980, when I was 8, my life, like many others was changed forever by a television programme, Cosmos. At the time I would … Continue reading The Search for My Pale Blue Dot

Full Disclosure?

Part 2 of the Starting Up and Breaking Down series. What had started as an introductory note has ended up as a separate post. It probably serves as a useful preface for the series, which gets out there in one go why I am taking the approach I am with regard to talking openly about … Continue reading Full Disclosure?

Starting Up and Breaking Down

Becoming an Entrepreneur when you have Poor Mental Health: A Journey in Unknown Parts You are probably here because you know one of three sides to me. As very few people know all three, let me say a paragraphette about each. They will quickly make clear why I am keeping this very public diary. I … Continue reading Starting Up and Breaking Down

Where the Limits Lie

“You don’t know where your limits are until you try to do something you can’t do. That’s where your limit is – right there where you quit” (Lazarus Lake) We all know “you can do anything you put your mind to” is just not true (we do, right, I mean, it’s not even science; it’s … Continue reading Where the Limits Lie

Adjusting Expectations

Let me say this up front. The title of this post is an unashamed riff on one of my favourite videos from the fabulous Ethan Newberry, aka The Ginger Runner. You should all watch it. https://www.youtube.com/watch?v=9ZQf3aiiYJE This is the 4th year I have toed the line for Race to the Stones, my first ultra back … Continue reading Adjusting Expectations

How You See Me, How You Don’t – Aaron Swartz Day

Please comment on the latest iteration in the comments or by replying on twitter to @agnieszkasshoes I would like to hear from all #actuallyautistic voices as well as any and all employers willing to consider this project You can download a pdf of the project as it stands here. Background "You ought always to be … Continue reading How You See Me, How You Don’t – Aaron Swartz Day

“Not for the likes of you”: How The Self-Improvement Industry is Failing People with Mental Ill Health

You are probably here because, among other reasons, you are, like me, ever so slightly obsessed by self-improvement books, articles, and videos. I devour self-improvement books, and I can usually pick up something from pretty much each one I read. But I also have a big problem. And with the self-improvement, how-to-succeed, be-a-successful-entrepreneur industry as … Continue reading “Not for the likes of you”: How The Self-Improvement Industry is Failing People with Mental Ill Health